Parkinson’s references

  1. Alty, J. et al. (2015) ‘What to do when people with Parkinson’s disease cannot take their usual oral medications’, Practical Neurology 16: pp. 122-128. doi: https://doi.org/10.1136/practneurol-2015-001267 
  2. Brennan, K.A. and Genever, R.W. (2010) ‘Managing Parkinson’s disease during surgery’, The BMJ, 341:pp. 990-993. doi: https://doi.org/10.1136/bmj.c5718 
  3. British Medical Association, Royal College of Physicians (2023). Clinically-assisted nutrition and hydration (CANH) and adults who lack the capacity to consent: Guidance for decision-making in England and Wales. Available at https://www.bma.org.uk/media/1161/bma-clinically-assisted-nutrition-hydration-canh-full-guidance.pdf. Updated 26th April 2023
  4. General Medical Council (2022). Treatment and care towards the end of life: good practice in decision making content. Available at: https://www.gmc-uk.org/professional-standards/professional-standards-for-doctors/treatment-and-care-towards-the-end-of-life. Updated 15th March 2022
  5. Hindmarsh, J., Hindmarsh, S. and Lee, M. (2021) ‘Idiopathic Parkinson’s Disease at the End of Life: A Retrospective Evaluation of Symptom Prevalence, Pharmacological Symptom Management and Transdermal Rotigotine Dosing’, Clinical Drug Investigation, 41(8):pp. 675-683. doi: https://doi.org/10.1007/s40261-021-01054-1 
  6. Jones, S.L. et al. (2011) ‘Parkinson’s disease in the acute hospital’, Clinical Medicine, 11(1): pp. 84-88. doi: https://doi.org/10.7861/clinmedicine.11-1-84 
  7. MacMahon, M. et al. (2012) ‘Management of Parkinson’s disease in the Acute Hospital Environment’, Journal of the Royal College of Physicians of Edinburgh, 42:pp. 157-62. doi: http://doi.org/10.4997/JRCPE.2012.215 
  8. National Institute for Health and Care Excellence (NICE) (1998) Clinical Knowledge Summaries –Parkinson’s Disease – Management – Scenario: End-stage Parkinson’s Disease. Available at: https://cks.nice.org.uk/topics/parkinsons-disease/management/end-stage-parkinsons-disease/ Updated: August 2023
  9. NHS Greater Glasgow and Clyde Area Drug and Therapeutics Committee (2021) ‘Parkinson’s disease and Palliative Care’ Available at: https://ggcmedicines.org.uk/blog/medicines-update/parkinson-s-disease-and-palliative-care/ Updated: 13 September 2023 
  10. Richfield, E.W., Jones, E.J. and Alty, J.E. (2013) ‘Palliative Care for Parkinson’s Disease: a Summary of the Evidence and Future Directions.’ Palliative Medicine, 27(9):pp. 805-810. doi: https://doi.org/10.1177/0269216313495287
  11. Rogers, A. et al. (2022) ‘The Terminal Phase in Parkinson’s Disease: a Mixed Methods Systematic Review’, British Journal of Neuroscience Nursing, 18 (1): pp. 12-19. doi: https://doi.org/10.12968/bjnn.2022.18.1.12 
  12. Sheung Ching Ng, J. (2018) ‘Palliative Care for Parkinson’s Disease’, Annals of Palliative Medicine, 7(3):pp. 296-303. doi: https://doi.org/10.21037/apm.2017.12.02 
  13. Smyth, J.A. (2015) The NEWT Guidelines for Administration of Medication to Patients with Enteral Feeding Tubes or Swallowing Difficulties, Print version, 3rd edn. Wales: Betsi Cadwaladr University Local Health Board (East). ISBN: 978-0-9552515-3-5
  14. Specialist Pharmacy Service (2022) Parkinson’sDisease Medicines in Swallowing Difficulties. Available at: https://www.sps.nhs.uk/articles/parkinsons-disease-medicines-in-swallowing-difficulties/
  15. Titova, N. and Chaudhuri, K.R. (2017) ‘Chapter Forty-Four – Palliative Care and Nonmotor Symptoms in Parkinson’s Disease and Parkinsonism’, in Titova, N. and Chaudhuri, K.R. (eds.) International Review of Neurobiology Volume 134, Academic Press, Pages 1239-1255. doi: https://doi.org/10.1016/bs.irn.2017.05.014
  16. UK Parkinson’s Excellence Network (2024) ‘Excellence Network data dashboards’. Available at: https://parkinsonsuk.hsj.co.uk 
  17. West Midlands Palliative Care Physicians (WMPCP): Guidelines for the Use of Drugs in Symptom control. Available at: West Midlands Guidelines for the use of drugs in Symptom Control Updated: 2024
  18. Wilcock, A., Howard, P. and Charlesworth, S. (eds.) (2022) ‘Palliative Care Formulary PCF8’ 8th edn. England: Pharmaceutical Press. ISBN: 9780857114372 
  19. Jost ST et al Mov Dis 202. Levodopa Dose Equivalency in Parkinson’s Disease: Updated Systematic Review and Proposals.
  20. Tomlinson CL, Stowe R, Patel S, Rick C, Gray R, Clarke CE. Systematic review of levodopa dose equivalency reporting in Parkinson’s disease. Mov Disord. 2010

Disclaimer

These Guidelines are intended for use by healthcare professionals and the expectation is that they will use clinical judgement, medical, and nursing knowledge in applying the general principles and recommendations contained within. They are not meant to replace the many available texts on the subject of palliative care.

Some of the management strategies describe the use of drugs outside their licensed indications. They are, however, established and accepted good practice. Please refer to the current BNF for further guidance.

Whilst SPAGG takes every care to compile accurate information , we cannot guarantee its correctness and completeness, and it is subject to change. We do not accept responsibility for any loss, damage or expense resulting from the use of this information.